I’m a page three girl @sarcoma_uk #sarcoma

Now, I don’t often do more than one post in one day but today I’ve made an exception..’

I heard I was in the hard copy of the Liverpool Echo. We eagerly went to the shop to purchase a copy and was shocked – I’m on the front page! Not only that, my full story is on page three. 

I’m a page three girl – now that’s a line I never thought I’d write!

Yes, Prime Minister @sarcoma_uk #sarcoma #cancer

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I am writing to you from a Virgin train after a little jaunt to the Capital. I’ve been working in our head office near Gatwick Airport, blah blah blah, that doesn’t interest you at all.  In between my hectic work schedule I managed to squeeze in a visit to Number 10.

About 4 weeks ago I received an invitation for an evening with the Prime Minister, Theresa May.  I eagerly accepted and waited in anticipation for the night.

Here’s how the story goes
I set off from my hotel in the freezing cold, dress on, hair done, invitation in hand, wait, wait, wait, wait – I forgot my photo id! I traipsed back to the hotel scolding myself for being unprepared.  After a short train ride I finally made it to Westminster and was awed by the sight of Big Ben lit up.  I was so excited.  I called my friend Lesley to meet her but no answer (I could guarantee she was in the pub!) so I headed to Downing Street and joined the queue with other sarcoma patients, medical experts and Sarcoma UK staff. After a thorough security process, I was at No 10!

No photos so we had to store our phones at the entrance.  We were all escorted to a drinks and canapés reception on the first floor which spanned two very impressive and plush rooms.  Paintings of previous Prime Ministers and Monarchs covered the walls. After mingling, meeting new people and being asked “hey, are you dizzytix? I follow you on Instagram” three times, Theresa May entered the room.  After a few pleasantries she headed to the microphone and spoke about sarcoma and why No 10 had chosen Sarcoma UK as their official charity.

In 2015, Chris Martin who was the Personal Private Secretary to the Prime Minister sadly passed away after being diagnosed with sarcoma. Obviously his friends and colleagues wanted to raise awareness and much needed funds for vital research.  This has catapulted Sarcoma UK from a small charity into the spotlight as a major player in driving change for sarcoma patients. WOW.

In the words of our Prime Minister:
We’ve been honoured to support Sarcoma UK as the 10 Downing Street charity of the year. Chris is a much missed figure who was hugely popular amongst his colleagues here and the whole team has been very proud to continue his legacy, helping raise funds and awareness for Sarcoma UK, the only charity of its kind in the UK.”|

It was lovely to hear Theresa May talking about the things that they have all been doing to raise funds for Sarcoma UK, from Tough Mudder (she made it clear she wouldn’t participate in that one!) to fancy dresses and bake offs. It made me realise, these are good hardworking people who are trying to do something amazing in memory of their colleague and friend and its completely irrelevant what your political stance is.

I am truly honoured to have been invited last night and to be in a room full of such wonderful and amazing people made it extra special.  I’d like to thank Sarcoma UK, not only for the invitation, but for the support and work that they do for people like me.

Richard Whitehead
The Paralympian Gold Medallist Richard Whitehead is the patron of Sarcoma UK.  He volunteers tirelessly for the charity and even completed 40 marathons in 40 days…(yep!) and last night, he was awarded the Point of Light volunteering award for his services to the charity. This award recognises exceptional volunteers who make a difference in the lives of others. He truly is an amazing and humble man who wants to help and improve things for us sarcoma patients. Well done and well deserved Richard.

To read Sarcoma UK’s write up please click here.

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Flying solo…. #sarcoma #cancer

Hello from a very sunny and hot Warrington where I am currently dining al fresco (BBQ in the garden!)

I had my final session today in my metacognitive therapy, now the scary part – flying solo. Can it be done? Yes, of course. This therapy has been life changing. I will see the psychologist at Liverpool Uni in three months and then again in six where he will assess the effectiveness of the therapy.

I’ve also had a great meeting with Jeni from Clatterbridge Cancer charity to discuss more opportunities in which I can get involved. As I’ve said before, you don’t have to climb a mountain or run a marathon to help out. Your time is just as important and great for meeting new people. 

Exciting times. Enjoy this sunny afternoon peeps 🙂 

A holiday to the top of Snowdon? #Sarcoma

  Yes, you read right. A holiday to Snowdon? Let me explain!

My sister, Sue, decided to climb Snowdon to raise funds for Sarcoma UK – her target was £150. Before we knew it, most of the Tickle clan had decided to join her. The team consisted of Daddy Tickle, Eldest Tickle (Sue), Naughty Tickle (Mike), Baby Tickle (Laura), My nephew Danny (the youngest of the team) and my cousin Karen.  Karen is actually on holiday in the UK, from Australia, and somehow, our Sue managed to get her to do the climb! The day was horrendous, with downpours and bad winds, but the team managed to reach the summit. Daddy Tickle (who is 60 by the way) arrived 30 minutes before the rest. 

Every day we are asked for donations from people doing different tasks which are a challenge – they are not easy as some people may perceive them to be. The team returned wet, sore, emotional and shattered. Tears were shed, laughs were had and money was raised. It wasn’t easy, it wasn’t a walk in the park and they deserve every penny donated to them. So, how did they do?

10 times the target

The team raised more than the targeted £150. In fact, they raised over ten times that, with the total standing at £1200 as of today. Donations even came from Karen’s friends in Oz.

I am so grateful that the team raised so much money for such a worthy cause. The money raised will go into research which is the key to finding a cure.

Thanks so much to all who donated.

  

#CancerDoesntTakeABreakForChristmas #sarcoma @clatterbridgecc

This time last year I was having chemotherapy at Clatterbridge Cancer Hospital and this time two years ago I was having radiotherapy there. I wanted to give something back so today, our Sue and I volunteered at the hospital to spread some festive cheer. We delivered mince pies to the patients on the wards and they went down a storm!
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When I was receiving treatment I was really grateful to the wonderful volunteers who gave up their time to help make this hospital the amazing place that it is. Whether it was to bring treats to the wards, give us massages or just pop up for a natter, I found these people an absolute God send. So I know that we helped today. We helped to cheer up some people who were receiving treatment and going through some of the darkest days of their lives. I look forward to helping again.

Please remember those who are facing a difficult Christmas and also those wonderful people working tirelessly to keep the hospital running 24/7.

Cancer doesn’t take a break for Christmas.

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Sarcoma Awareness Week and the amazing @marathonchamp

Yesterday I went to The Royal Orthopaedic Hospital in Birmingham to support the ‘On the ball’ campaign as a patient rep for Sarcoma UK. The aim of the campaign is to create awareness and drive early diagnosis of sarcoma – ideally when they are the size of a golf ball (5cm).

Sarcoma is treatable if detected early so this is a great campaign. For more information please visit the Sarcoma UK website by clicking here.

The amazing Richard Whitehead was there to support and I was lucky enough to meet the lovely man.

Here are a few pictures.
This picture shows Richard Whitehead, Professor Grimer, Nigel & Myself as patient reps.
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Support Group Website for Merseyside & Cheshire
I’ve been constructing a website to complement our support group. This has now been published to the Sarcoma website which is great as it enables other people affected by sarcoma to see what support we can offer. Click here to take a look.

Sarcoma (and Mr Chandrasekar) in the news
Here’s an interesting story about another patient from the North West. Click here to view it.

And lastly, I will be taking my Sarcoma UK t-shirt away with me. I’ll snap myself wearing it in The Big Apple. It is Sarcoma Awareness Week after all….!