This week Jeni from the Clatterbridge Cancer Centre asked me to be a patient representative for them at an event in Warrington this week. Of course I said yes. This hospital has saved my life three times and is still looking after me.
Two ladies, Lorraine and Gill had decided to shave their heads to raise funds for this amazing hospital. The bonus was that Warrington Wolves player Ashton Sims was going to be the guest of honour!
Lorraine and Gill raised over £5,000 WOW!! They even looked fab with shaved heads! I looked like Uncle Fester when I was bald🙂 Well done ladies.
Scroll down for the video of Ashton shaving their heads.
Well today was the results of my first ever six monthly scan.
What a wait
It was sheer hell sat in the waiting room at The Linda McCartney Centre. It was heaving, standing room only. I arrived early as usual but had an hours wait from my actual appointment time – as I’ve said before this us fine as it means a patient needs Dr Ali’s support like I’ve needed it in the past. After the agonising wait, with me thinking the worst, I heard the wonderful words out of Dr Ali’s mouth “it’s good”
My scan was clear. Free of the sarcoma which has desperately tried to cling to me for almost four years. I was relieved but exhausted-it certainly takes it’s toll on you being worried! I’ll certainly be celebrating at Vicky & Mikes wedding tomorrow.
F*ck you cancer
This week was sad as we said goodbye to Paul O’Neill after living with leukaemia for the last 11 months. Here I am releasing a message tied to a balloon and yep, it’s in the colours of Saints and it was worth holding the red ballon for you. Good night God bless Paul X
Well today is the last day of Sarcoma Awareness week here in the UK and what a week. Sarcoma has taken over my Facebook feed, my Twitter feed and even on Instagram. It’s been great to see so many people sharing their stories and generally raising awareness of such a rare cancer.
We closed the week with my sister doing the 10k Tesco Race for Life at Haydock racecourse today with #sarcomaaware on her back. Well done to Sue and everyone who took part.
Good luck to our US patients who are continuing to spread the word in Sarcoma Awareness month.
I hope you’ve enjoyed the posts this week, and can assure you, I won’t bombard you every day from now on🙂
Good night xx
Here’s my transformation all the way from before diagnosis to now.
This week I’ve shared lost of posts with the aim of raising awareness. You’ve heard about sarcoma and seen scars but I thought I would share what my particular type of Sarcoma looks like close up….
Wow! Don’t be fooled by this pretty pink thing, it’s deadly.
Be aware of your body and ANY changes.
It’s day #2 of Sarcoma Awareness Week here in the UK and today was all about raising awareness of this rare cancer. We camped out in the foyer of the Royal Liverpool University Hospital all bursting to share information and stories.
During the day, one of our patients brought 200 fuscia plants to sell and we raised over £250 for charity.
The old and the new
We some to lots of people today so with different stories. I had a lady approach me to say that she had an osteosarcoma in 1997 when she was 27. 19 years a survivor-WOW! I love positive stories and this one gave me a boost.
We also had a lady who wanted information as her father in law was diagnosed yesterday. He’s at the very start of his journey and we wish him luck for the coming months.
It’s always great to meet the group. And we’ve had a lovely day. Thanks to everyone for supporting us this week.